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Understanding sleep with Osteogenesis Imperfecta (OI)

Top tips for sleep in children with osteogenesis imperfecta

Muscular aches and pains are common in osteogenesis imperfecta (OI) especially if you have had an active day. These can be worse at night as this is a time to switch off and relax, distractions are less, which can make aches and pains more noticeable. Ideas which may help:

  • Understand and utilise pacing strategies to help ensure you are not overexerting your body during the day, causing excessive muscle soreness.
  • Massage
  • Hot bath
  • Pain relief
  • Stretching and/or relaxation before bed

Heat regulation

Sweating

Is often described by children with osteogenesis Imperfecta. Ensure the bedroom is the right temperature, not too hot or cold, around 16-18 degrees.

Pyjamas

Make sure they are made of natural fibres and not synthetic material, which increases heat, as they are not as breathable. Make sure these are also appropriate for the weather. For example thin in the summer, thicker in the winter.

Bed sheets

Making sure they are made of natural fibres, and not synthetic material, can reduce heat retention. Coolmax bedding is specially designed to help wick away moisture from the body when in bed.

Having a summer and winter duvet with different tog ratings can help ensure you do not get too cold in the winter or hot in the summer.

Duvet tog reccomended for each season of the year

 

 

 

Mattress provision

Ensuring you have a good quality mattress that is comfortable and supports your spine is important to reduce back pain. Mattresses should be replaced every 10 years or in line with manufacturer’s guidelines. Memory foam or mattresses made of synthetic fibres are generally warmer than a pocket sprung mattress made of natural fibres. If you are buying a memory foam mattress ensure it has cooling properties such as Coolmax.

  • Pain, heat and not getting comfortable will all add to how much you move in bed which could disrupt sleep.
  • With osteogenesis imperfecta (OI) you are more likely to wake on movement as it can be more effort to move in bed and get into a comfortable position without waking to reposition.

Understanding sleep

Sleep can be divided in to Non-REM sleep and REM sleep. Different sleep stages are thought to have different functions and during sleep you will cycle through all stages. This is known as a sleep cycle. You will have 4 to 5 sleep cycles per night, with brief awakenings during the night.

Diagram of the sleep cycle going through stages of awake, REM and deep sleep stages

Non REM

A mixture of light (stage 1 to 2) and deep (stage 3) sleep.

Stage 1, 2 and 3 are when your body becomes restful and muscles relax; breathing, eye movements and brain waves all slow down. Stage 3 (deepest sleep stage) is when growth and repair happens.

If you have an injury or high level of fatigue the body is working harder to repair itself. Not enough time in this restorative sleep stage may affect the body’s ability to repair itself, grow and fight infection. You may spend less time in this deeper restful sleep due to aches, pain, heat regulation, worries and anxiety. Stage 3 sleep occurs more in the early part of the night.

REM sleep

This sleep stage is when your muscle tone is at its lowest (so you do not act out your dreams). REM sleep is when the brain consolidates its learning from the day and improves memory. It is also when most of the dreaming takes place. Children spend more time in this stage than adults. As the night goes on you spend more time in REM sleep and this is often why you may wake from a dream. Not enough time in REM sleep can influence learning consolidation, and processing of anxiety and/or worries.

Brief awakenings overnight

When moving through the different sleep stages that your body and brain need overnight, it is normal to wake up briefly whilst changing sleep stage.

Sleep hygiene tips

A structured relaxing bedtime routine with a set time to go to bed and wake up will help with the body’s natural circadian rhythm (the brains internal clock which moves between sleepiness and alertness).

Dimming/turning off bright lights and avoiding screen time (at least an hour before bed) will help with your brains natural release of melatonin (natural hormone released in the brain when the sun goes down/in darkness to help you sleep.

Having a light snack 30 minutes before bed can be part of a healthy bedtime routine. Bananas, cherry juice, and milk have all been shown to have an effect on the natural release of melatonin and tryptophan which help you sleep. Avoid sugary drinks/foods and caffeinated drinks before bed.

Avoid high levels of activity/excitement during the run up to bed time (at least one hour before bed). High levels of activity/excitement before bed may stop the release of melatonin and may release hormones to make you more alert such as adrenalin

Create a calm bedroom environment. Bedrooms should be a place for sleep. Minimise toys, TV’s, bright wall colour/pictures and other stimuli in the bedroom to provide less distraction. To help a child associate their bedroom with sleep this space should not be used as a place to play or as a punishment such as ‘go to your room’.

Any sleep strategies you put in place to help your child get to sleep such as a teddy, night light etc should remain in place all night. A change to the surrounding could disrupt the child’s sleep or cause arousal on waking during the night, as the surroundings have changed and the brain is trying to respond to this change.

Contact us

If you have any questions or concerns, please email the Metabolic Bone Team on: sheffield.boneteam@nhs.net

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Disclaimer

Please note: this is a generic information sheet relating to care at Sheffield Children’s NHS FT. These details may not reflect treatment at other hospitals. This information is not intended as a substitute for professional medical care. Always follow your healthcare professionals’ instructions. If this resource relates to medicines, please read it alongside the medicine manufacturer’s patient information leaflet. If this information has been translated into another language from English, efforts have been made to maintain accuracy, but there may still be some translation errors. If you are unsure about any of the guidance in this resource or have specific questions about how it relates to your child, always ask your healthcare professional for further advice.

Resource number: MBD11

Resource Type: Article

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