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Resource Type: External

NordiCare information resource on Turner’s syndrome for teenagers.

Resource Type: External

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Resource Type: External

NordiCare information resource on Turner’s syndrome for parents and carers.

Resource Type: External

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Resource Type: External

BritSPAG information resource about Rokitansky syndrome.

Resource Type: External

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Resource Type: External

BritSPAG information resource about polycystic ovary syndrome (PCOS).

Resource Type: External

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Resource Type: External

National Kidney Foundation information about nephrotic syndrome in children.

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Resource Type: External

Versus Arthritis information on cyclophosphamide to treat lupus, vasculitis, myositis, systemic sclerosis, Sjögren’s syndrome and sometimes rheumatoid arthritis.

Resource Type: External

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Resource Type: External

A set of tips to help people manage their Tourette Syndrome symptoms.

Resource Type: External

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Resource Type: Article

Problems with sleep are common for children and young people with chronic fatigue. This resource will give you some useful information and tips on how to manage your sleep as part of your energy management programme. Sleep is essential for your health and wellbeing. Sleep improves your energy, helps...

Resource Type: Article

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Resource Type: External

A resource by the British Dietetic Association about irritable bowel syndrome (IBS) and diet.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about emicizumab (or Hemlibra) for people with an inhibitor.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about emicizumab (or Hemlibra) for people without an inhibitor.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 13 deficiency.

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Resource Type: External

The Haemophilia Society resource about factor 11 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 10 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 7 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 5 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about Bernard-Soulier syndrome.

Resource Type: External

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Resource Type: External

Information by Leukaemia Care about Down’s syndrome and leukaemia.

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Resource Type: External

Information by the Children’s Cancer and Leukaemia Group (CCLG) about posterior fossa syndrome (PFS). PFS is also known as cerebellar mutism syndrome.

Resource Type: External

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Resource Type: External

Information by the Children’s Liver Disease Foundation about Gilbert’s syndrome. Gilbert’s syndrome is a mild liver condition that causes jaundice (yellowing of the skin).

Resource Type: External

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Resource Type: External

Information resource on Alagille syndrome by the Children’s Liver Disease Foundation. Alagille synrdome is a rare, genetic condition that can affect different parts of the body including the liver, heart, kidneys, eyes, face and bones.

Resource Type: External

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Resource Type: Article

What is a skin biopsy? A skin biopsy is a short procedure used to take a small piece of skin. This is then sent to the laboratory. Here, they can look at it under a microscope, or grow more cells from it. Why does my child need a skin biopsy? We take a skin biopsy… Continue Reading Skin...

Resource Type: Article

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