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Resource Type: Article

What is complex regional pain syndrome? Complex regional pain syndrome (CRPS) is an uncommon condition. It usually affects one limb, but can happen in other areas of the body. Severe pain is the main symptom. Other sensory symptoms can include: swelling temperature colour changes Motor dysfunction...

Resource Type: Article

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Resource Type: Article

What are tics and Tourette syndrome? Tics are sudden jerky movements such as eye blinking or shoulder shrugging (motor tics) or making sounds such as throat clearing or saying words (vocal tics). Tics often get worse if someone is feeling excited, nervous or stressed. Tics usually start when a child...

Resource Type: Article

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Resource Type: Article

Safe sleep for your baby reduces the risk of sudden infant death. Top tips ✅ Place your baby on their back to sleep from the very beginning for both day and night sleeps. ⚠️ This will reduce the risk of sudden infant death (sometimes called cot death). Side sleeping is not as safe as...

Resource Type: Article

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Resource Type: Article

This resource has been produced by the pain management therapy service for children with chronic fatigue syndrome ME. Why take time to rest and relax? Making time in the day to take a break from activities helps your body to recover physically, and gives your brain space to simmer down and think...

Resource Type: Article

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Resource Type: External

NordiCare information resource on Turner’s syndrome for teenagers.

Resource Type: External

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Resource Type: External

NordiCare information resource on Turner’s syndrome for parents and carers.

Resource Type: External

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Resource Type: External

BritSPAG information resource about Rokitansky syndrome.

Resource Type: External

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Resource Type: External

BritSPAG information resource about polycystic ovary syndrome (PCOS).

Resource Type: External

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Resource Type: External

National Kidney Foundation information about nephrotic syndrome in children.

Resource Type: External

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Resource Type: External

Versus Arthritis information on cyclophosphamide to treat lupus, vasculitis, myositis, systemic sclerosis, Sjögren’s syndrome and sometimes rheumatoid arthritis.

Resource Type: External

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Resource Type: External

A set of tips to help people manage their Tourette Syndrome symptoms.

Resource Type: External

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Resource Type: Article

Problems with sleep are common for children and young people with chronic fatigue. This resource will give you some useful information and tips on how to manage your sleep as part of your energy management programme. Sleep is essential for your health and wellbeing. Sleep improves your energy, helps...

Resource Type: Article

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Resource Type: External

A resource by the British Dietetic Association about irritable bowel syndrome (IBS) and diet.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about emicizumab (or Hemlibra) for people with an inhibitor.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about emicizumab (or Hemlibra) for people without an inhibitor.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 13 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 11 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 10 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 7 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about factor 5 deficiency.

Resource Type: External

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Resource Type: External

The Haemophilia Society resource about Bernard-Soulier syndrome.

Resource Type: External

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Resource Type: External

Information by Leukaemia Care about Down’s syndrome and leukaemia.

Resource Type: External

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Resource Type: External

Information by the Children’s Cancer and Leukaemia Group (CCLG) about posterior fossa syndrome (PFS). PFS is also known as cerebellar mutism syndrome.

Resource Type: External

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