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Resource Type: Article

This resource is for parents or carers of children with a diagnosed venom allergy and who are considering undergoing venom immunotherapy. What is venom immunotherapy? Most allergies are due to an over reaction of the immune system to foreign material, such as bee or wasp venom, pollens, or animal...

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Resource Type: Article

It is important to continue to exercise your joints after a burn injury. If the skin over or near a joint has been damaged by a burn, it can become tight and eventually contract. A contracture is a lack of movement at a joint and this will happen if the exercises are not done regularly.…...

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Resource Type: Article

Teeth care for children and youngsters with neuromuscular conditions This information has been put together by the Neuromuscular Service at Sheffield Children’s Foundation NHS Trust and Charles Clifford Dental Hospital. We hope it will provide you with some useful information, resources and...

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Resource Type: Article

Children with developmental difficulties, for example Autism Spectrum Disorder (ASD), often have problems with eating. Research has shown that 40 to 80 percent will have problems with food at some point. This can range from children who over eat, to children who have restricted diets. As parents or...

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Resource Type: Article

Listening tactics can be used for children with mild hearing loss, fluctuating hearing loss and for children who have listening difficulties. Your child may experience difficulties with: Following spoken instructions and conversation. Following fast paced speech. Detecting subtle speech differences...

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Resource Type: Article

Most people live normal, healthy lives with one kidney. However it is important to help your child to stay as health as possible and to protect the kidney they have. What do the kidneys do?             Most people have 2 kidneys which produce urine to remove excess...

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Resource Type: Article

This information has been produced to explain what will happen when your child attends the spasticity management clinic. What is a spasticity clinic? The spasticity management clinic provides assessment and management of complex spasticity or dystonia (abnormal muscle stiffness) due to neurological...

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Resource Type: Article

Your child may have recently attended a respiratory clinic and have seen a respiratory doctor who has recommended your child have non-invasive ventilation (NIV) overnight. We are aware that for all children, getting used to wearing a ventilator and a mask overnight can sometimes be difficult. The...

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Resource Type: Article

What are neurological observations? Neurological observations are a series of simple tests and observations that help the nurses and doctors who are caring for your child to assess your child’s level of consciousness. The tests and observations involve: waking your child and asking them a few...

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Resource Type: Article

What is an external ventricular drain (EVD)? Cerebrospinal fluid is a protective fluid that surrounds the brain and spinal cord. It flows through the fluid filled spaces in the brain called ventricles. Our body normally controls the amount of cerebrospinal fluid in these spaces by production and...

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Resource Type: Article

What is intracranial pressure (ICP) monitoring? Intracranial pressure (ICP) monitoring is a diagnostic neurosurgical procedure which is used to measures the pressure in someone’s head. A catheter (tube) is put through a small hole in the skull and into the outer layer of the brain. The...

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Resource Type: Article

What is Bi-level ventilation? Bilevel positive airway pressure (BiPAP) ventilation is a type of breathing support that assists your child’s ability to breathe. It uses a mask and a BiPAP ventilator. The ventilator blows pressurised air through a mask into the airway and lungs. This will open up...

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Resource Type: Article

What is auditory processing? Auditory processing is the ability to break down speech (strings of sound) up into words, groups of sounds and individual phonemes. The problem is not with hearing, but with making sense of what you are hearing. What is it like to have an auditory processing difficulty?...

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