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Resource Type: Article

What is a DEXA scan? DEXA stands for dual energy X-ray absorptiometry. The scan directs 2 low-strength X-ray beams at your child’s body, and a computer uses this data to calculate the density of their bones. How can we prepare for the scan? The scan room has a tracking hoist attached to the...

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Top tips for sleep in children with osteogenesis imperfecta Muscular aches and pains are common in OI especially if you have had an active day. These can be worse at night as this is a time to switch off and relax, distractions are less, which can make aches and pains more noticeable. Ideas which...

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Resource Type: Article

Fine motor co-ordination involves the ability to control the small muscles of the body, in particular the hands. Children with (osteogenesis imperfecta) OI often have very hypermobile hands (bendy with a weak grip). They may find fine motor activities more difficult than other children. They will...

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Starting nursery or pre-school Young children with OI would benefit from the opportunity to attend nursery or pre-school. We advise parents to arrange a meeting well in advance of your child’s start date. People at the meeting should include key workers involved in your child’s care, and...

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