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Top tips for sleep in children with osteogenesis imperfecta Muscular aches and pains are common in OI especially if you have had an active day. These can be worse at night as this is a time to switch off and relax, distractions are less, which can make aches and pains more noticeable. Ideas which...

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Resource Type: Article

What is transition? Transition is a process of moving from one place or stage of life to another; moving from primary to secondary school is a transition your child will have already made. As your son or daughter is approaching their teenage years we will be encouraging them to be more aware of...

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Resource Type: Article

Introducing the idea of transition As you are getting older it is important to start talking to you about your transition from seeing the Metabolic Bone Team at Sheffield Children’s Hospital to being seen at an adult hospital. What is transition? Transition is the move from one place or phase...

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Resource Type: Article

You have been invited to attend an intensive therapy week with the metabolic bone disease team. This resource will give you an idea of what to expect from us throughout the week and what will be expected of you and your parents and carers. What is an intensive therapy week? During an intensive...

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Resource Type: Article

Your child has been invited to attend an intensive therapy week with the metabolic bone disease team. This resource will explain what is involved within the intensive therapy week. It will give you an idea of what to expect throughout the week and what will be expected of you and your child. What...

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Resource Type: Article

Starting primary school The transition into primary school needs to be planned and well managed. The school should arrange a meeting with the child’s parents and carers and any other professionals before the child starts school. This gives everybody the opportunity to get to know each other,...

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Resource Type: Article

Starting secondary school The transition from primary into secondary school needs to be planned and well managed. It is advisable to arrange a meeting, well in advance of the pupil changing school so that the key people involved in the pupil’s education can meet their and parents and carers, and...

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Resource Type: Article

Introduction This resource is written as an advice for teachers and gym instructors working with young people who have expressed an interest in attending a gym and have been diagnosed with a condition which affects the strength of their bones, such as osteogenesis imperfecta (brittle bone disease),...

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Resource Type: Article

Before your operation Keep yourself as active and as strong as you can. Carry on doing your normal sports, walking and activities, unless you have been told not to by your doctor or physiotherapist. Have a go at the exercises in this resource so you know that you can do them and what they...

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Resource Type: Article

What are fine motor skills? Fine motor co-ordination involves the ability to control the small muscles of the body, in particular the hands. Children with osteogenesis imperfecta (OI) often have very hypermobile hands (bendy with a weak grip). They may find fine motor activities more difficult than...

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Resource Type: Article

Fine motor co-ordination involves the ability to control the small muscles of the body, in particular the hands. Children with (osteogenesis imperfecta) OI often have very hypermobile hands (bendy with a weak grip). They may find fine motor activities more difficult than other children. They will...

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Resource Type: Article

Starting nursery or pre-school Young children with OI would benefit from the opportunity to attend nursery or pre-school. We advise parents to arrange a meeting well in advance of your child’s start date. People at the meeting should include key workers involved in your child’s care, and...

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