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Achondroplasia: positioning and handling your babyAchondroplasia: positioning and handling your baby

Resource Type: Article

Achondroplasia: positioning and handling your baby

Babies born with achondroplasia are more likely to develop a small curve in the lower part of the back. This is called a gibbus. The gibbus will become more noticeable as your child starts sitting up, but it usually improves once your child learns to pull to stand and walk. Babies with...

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achondroplasiabone diseaseconditionmetabolic
Physiotherapy in the metabolic bone teamPhysiotherapy in the metabolic bone team

Resource Type: Article

Physiotherapy in the metabolic bone team

The physiotherapists in the metabolic bone team are: Claire Hill, Davina Ford, Caroline Marr, and Grace Whitaker. They specialise in working with children that have osteogenesis imperfecta, and other bone conditions such as X-linked hypophosphataemic rickets, hypophosphatasia, juvenile osteoporosis...

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bone diseasebone teamconditiondiseasemetabolicphysiophysiotherapy
Social worker in the osteogenesis imperfecta teamSocial worker in the osteogenesis imperfecta team

Resource Type: Article

Social worker in the osteogenesis imperfecta team

Why is there a social worker in the osteogenesis imperfecta team? As part of your multidisciplinary team, you will find a social worker within each of the centres of the osteogenesis imperfecta Highly Specialised Service in England. The 4 centres are in Birmingham, Bristol, London Great Ormond...

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bone diseaseimperfectametabolicmultidisciplinaryosteogenesissocial worker

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