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Neuromuscular transition plan

What is this information?

This information helps to explain your transition from the Sheffield Children’s NHS Foundation Trust Neuromuscular Service into the adult Neuromuscular Service at Sheffield Teaching Hospitals NHS Foundation Trust. It has been broken into sections – Ready, Steady and Go – so you to know what to expect and when.

</p> <h2>Ready - Age 14 and above - Year 9</h2> <p>
  • Your neuromuscular consultant will talk through the idea of your health care transition and what this word ‘transition’ means for you and your family
  • Your neuromuscular therapy care will continue to be provided through Sheffield Children’s NHS Foundation Trust
  • Your neuromuscular therapy team will ask for your consent to refer to other services
  • We may refer you to the Sheffield Children’s Complex Transition Team if there are lots of health professionals supporting you
</p> <h2>Steady - Ages 16 to 18 - Year 11 and above</h2> <p>
  • At your next neuromuscular clinic appointment with your consultant they will talk through the transition clinic with you, what it will look like, who will be present and its purpose
  • You will be given the transition leaflet: Moving into Adult Care (published by Sheffield Children’s NHS Foundation Trust)
  • You will be given every opportunity to ask questions around your health condition
  • The paediatric neuromuscular therapy team will continue to work with you
  • You can ask any questions about adult services and where you might get support from
  • A transition letter from the neuromuscular therapy team prior to clinic will be posted to you. Together with this letter there will be two leaflets: Moving into Adult Care (published by Sheffield Children’s NHS Foundation Trust), Transition: A Guide (published by MD UK) and a link to: www.disabilityrightsuk.org/resources/careers-and-work-disabled-people
  • Your paediatric NMCA (Neuromuscular Care Advisor) will write a summary for the adult NMCA which will include brief details if their involvement in your paediatric care
  • There are 4 transition clinics a year. They are usually held at Ryegate Children’s Centre. In attendance will be your neuromuscular consultant, and paediatric physiotherapist, and the adult team consisting of consultant, physiotherapist, NMCA and a specialist nurse

</p> <h2>Go - What's next</h2> <p>
  • At your transition clinic you and your parents or carers will be introduced to the adult team
  • Now is a good time to ask any questions about the adult Neuromuscular Service and associated health care
  • At the transition clinic you will receive a pack of information from the adult health care NMCA
  • Following the transition clinic you will receive a letter from your paediatric neuromuscular consultant that you are no longer under the care of Sheffield Children’s NHS Foundation Trust with identification of you adult heath care provision

Hello – managing your own care

Managing your own care

  • You and your family will be in charge of managing your therapy care after being discharged from Sheffield Children’s. When you have a problem that you think you need physiotherapy or occupational therapy for, you will need to contact the adult team and refer yourself to them.
  • Should you need assistance from the adult NMCA, you will need to contact them and request support

Useful resources

Disability Rights UK for information on welfare and rights, employment, further education covering all areas of daily life.

Scope for information on practical support on all matters.  Free helpline on 0808 800 3333.

Young Minds for information around mental health and supporting others.

Living Made Easy for information on equipment around all aspects of daily living.

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Disclaimer

Please note: this is a generic information sheet relating to care at Sheffield Children’s NHS FT. These details may not reflect treatment at other hospitals. This information is not intended as a substitute for professional medical care. Always follow your healthcare professionals’ instructions. If this resource relates to medicines, please read it alongside the medicine manufacturer’s patient information leaflet. If this information has been translated into another language from English, efforts have been made to maintain accuracy, but there may still be some translation errors. If you are unsure about any of the guidance in this resource or have specific questions about how it relates to your child, always ask your healthcare professional for further advice.

Resource number: NM7

Resource Type: Article

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