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Ryegate Children’s Centre front entrance, off the A57
The Neuromuscular service based at Ryegate Children’s Centre provides care and support to children and their families with disorders of nerves, muscles and related conditions. We provide a specialist service to children, young people and their families who live in the city of Sheffield, South Yorkshire, North Derbyshire, and North and East Lincolnshire.
Our team consists of:
We have close liaisons with the respiratory team, spinal surgical team, cardiology team, orthopaedics, endocrine and specialised bone teams at Sheffield Children’s Hospital. We have on-site specialist diagnostic services for neuromuscular conditions such as neuroradiology (including muscle imaging), neurophysiology, genetics, biochemical analysis, muscle biopsy and a gait laboratory. There is access to specialised neurology psychologists, occupational therapists, speech and language therapists, physiotherapists, clinical genetics, orthotics, and a palliative care service.
Our paediatric service works very closely with our colleagues in the adult neuromuscular service which is based at the Royal Hallamshire Hospital, Sheffield. Together with our adult service colleagues, we hold regular transition clinics for youngsters who are moving from child health services into adult care. We aim to offer a seamless move for our youngsters from paediatric care to the adult health service.
Our consultant paediatric neurologists will see your child prior to diagnosis and when a neuromuscular condition is confirmed. Your child will attend periodic neuromuscular out patient clinic appointments. Your child’s neuromuscular consultant acts as a gatekeeper to all other medical specialities which your child might require access to. Thereafter your child will remain with their named neuromuscular consultant throughout their childhood years.
The specialist neuromuscular care adviser offers advice and support at diagnosis and beyond and acts as a link to your neurologist between clinic appointments. The types of advice and support varies according to individual needs. The care advisor can provide information and practical advice on a variety of subjects:
Advice can be given face to face, via telephone, email or letter, attending home visits or at your child’s out-patient neuromuscular clinic appointments.
The specialist neuromuscular physiotherapist works closely with our consultants, attending neuromuscular out patient clinics. We offer therapy clinic consultations to supplement the work we do in clinic. We provide:
Our advanced nurse practitioner (ANP) works closely with the consultants, often taking part of their role in running clinics, prescribing medicines, liaising with other medical specialities, taking bloods or performing theatre lists. The ANP also works with the rest of the team in supporting the whole family from diagnosis to continuing treatment.
Ryegate Children’s Centre,
Tapton Crescent Road,
Sheffield,
S10 5DD.
You can get to us via public transport on the number 51 bus from the town centre, and get off at Vernon Terrace.
Parent and carer, visitor and Blue Badge parking is available on site.
We actively participate in the North Star Audit (national collaboration) for children and young people with Duchenne muscular dystrophy (DMD) and we offer new therapies available to these children (for example, Ataluren). Sheffield is a trial site for Idebenone use in DMD.
Working together with Leeds Teaching Hospital Neuromuscular Team, we are participating in research around the use of virtual reality in gaming, to supplement physiotherapy programmes with youngsters presenting with DMD.
Sheffield Children’s Hospital is part of the SMA Network and we participate in SMAREACH – a national research platform for children and young people with this condition.
We were accepted in 2021 as a trial site for the Fibrogen Trial for DMD.
Research continues to be a focal point of interest in our service. We continue to explore research topics which are pertinent to our neuromuscular children and youngsters and we actively seek participation in research.
If you have any questions or concerns, please contact:
Please note: this is a generic information sheet relating to care at Sheffield Children’s NHS FT. These details may not reflect treatment at other hospitals. This information is not intended as a substitute for professional medical care. Always follow your healthcare professionals’ instructions. If this resource relates to medicines, please read it alongside the medicine manufacturer’s patient information leaflet. If this information has been translated into another language from English, efforts have been made to maintain accuracy, but there may still be some translation errors. If you are unsure about any of the guidance in this resource or have specific questions about how it relates to your child, always ask your healthcare professional for further advice.
Resource number: NMT1
Resource Type: Article
Western Bank
Sheffield
S10 2TH
United Kingdom
Switchboard: 0114 271 7000
We’ve got a special MRI scanner just for teddies so children can see what it’s like before they have a scan.
Help to transform our extraordinary hospital into something even better.