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Including children who have osteogenesis imperfecta in PE lessons

This resource has been developed by Metabolic Bone Disease service to include children with osteogenesis imperfecta (OI) in mainstream P.E. lessons at school.

In general

Please seek specific advice from the pupils physiotherapist for their inclusion in P.E. lessons. Specific advice and guidelines should be given to all staff involved in the teaching of P.E and the delivery of extra-curricular sessions whenever a pupil with OI is involved.

1:1 support or supervision should be considered. Pupils should always be included in their age-appropriate classes and groups.

Pupils should be given time and space in order to attempt and complete all suitable P.E. activities.

Pupils should be encouraged to participate fully in P.E. lessons and to do activities as independently and safely as possible. They should be encouraged to join in non body-contact sports, particularly swimming.

Key pieces of advice

Lightweight P.E. equipment can be used by pupils such as foam balls and beanbags.

Pupils with OI may need to take time during a P.E. session to rest if they are tired or experience aches or pains.

If appropriate, wheelchair users should be encouraged to get out of their wheelchair as much as possible. Muscles that cross the hip joint can become short and stiff if pupils sit for long periods of time.

Swimming and water therapy are ideal activities for pupils with OI, as water allows independent movement with little risk of fracture or injury.

Be aware of the danger of pupils tripping over P.E. equipment scattered on the floor.

Skills at all sports should be learnt and pupils can help with refereeing or scoring during contact activities.

Pupils with OI may find it difficult to keep up with their peers when running a straight distance. Instead do, warmups that involve running within a confined area such as a sports court or gym is preferable to running around an open area.

If a pupil is unable to do an action, encourage them to come up with an alternative.

Be aware of the possible danger of collisions in team games. It may be preferable to make multiple smaller group sizes and locate the pupil with OI into an area which has a limited number of pupils allowed to move in it. This may help minimise the risk of them colliding with other pupils.

Pain in children with OI should be taken seriously and teachers need to report concerns about pain to the parent or carer.

Some students with OI may need modified equipment or resources that assist with fatigue and support them to participate in physical activities. For example, some pupils may need to wear specialised splints or footwear to provide joint stability. They should wear any such equipment while doing P.E.

Risks

Due to the risk of fractures, pupils with OI should:

  • not be allowed to jump off apparatus. They should alternatively be instructed to climb down safely onto a mat below
  • not take part in ‘high impact’ repetitive activities in standing or sitting, such as trampolining, horse riding, sledging, quad biking
  • avoid contact sports such as rugby or judo
  • not be allowed to tackle or take part in rough play
  • avoid activities that could lead to a fall, such as ice skating, skiing, roller blading

Pupils with OI have an increased likelihood of fracturing their bones, often with relatively low trauma so contact sports and repetitive high impact activities should be avoided.

It is important that pupils with OI are encouraged to exercise as much as possible to promote muscle and bone strength. Pupils with OI should not ‘sit out’ of lessons. PE activities can and should be modified to allow participation.

Generalised pain and fatigue are common particularly as pupils get older. These need to be identified and managed with the help of health professionals.

Risk management and implementation of an individual health care plans for pupils with OI is essential.

Support and advice

A paediatric physiotherapist can assist schools in maximising participation in physical activity, while ensuring the child with OI remains as safe as possible.

You can seek advice from the pupils physiotherapist on how to incorporate some of the pupils’ individual stretches or exercises into the lesson for the whole class to do as well.

A visit to the school from a member of the OI Team can be arranged if necessary to provide additional information or support to staff or pupils.

First aid

Fortunately fractures at school are not common but can and do happen.

All suspected or actual fractures should be examined and treated by the child’s doctor or hospital or an orthopaedic specialist which the child’s parents or carers can organise. If a fracture is suspected at school, first aid procedures should be applied and the parent or carer contacted. The ambulance should be called for major injuries and in an emergency.

An individual health care plan should be developed that includes agreed procedures for responding to a suspected fracture or more serious injury. The plan should be developed in consultation with the family and medical professionals involved in the pupil’s care.

Contact us

If you have any questions or concerns, please contact the metabolic bone disease team on 0114 226 7890.

  • Consultants: Dr Paul Arundel
  • Clinical Nurse Specialist: Gemma Greenacre, Liz Lee, Clare Crossland, Rebecca Dhillion
  • Physiotherapists: Claire Hill, Davina Ford, Caroline Marr
  • Occupational Therapists: Jill Baker, Kieran Murphy, Nicola Holland
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Disclaimer

Please note: this is a generic information sheet relating to care at Sheffield Children’s NHS FT. These details may not reflect treatment at other hospitals. This information is not intended as a substitute for professional medical care. Always follow your healthcare professionals’ instructions. If this resource relates to medicines, please read it alongside the medicine manufacturer’s patient information leaflet. If this information has been translated into another language from English, efforts have been made to maintain accuracy, but there may still be some translation errors. If you are unsure about any of the guidance in this resource or have specific questions about how it relates to your child, always ask your healthcare professional for further advice.

Resource number: MBD22

Resource Type: Article

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United Kingdom

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