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You will join the cystic fibrosis young persons clinic you are about 14 years old.
The young persons clinic is very 2 months.
There are 3 clinics a year here at Sheffield Children’s Hospital and 2 a year on the adult cystic fibrosis unit at the Northern General Hospital. All of these clinics are on a Tuesday afternoon at Sheffield Children’s and Wednesday afternoon at the Northern General. The first appointment is 2pm. We usually see about 6 to 8 young people per clinic. At these clinics teams from both Sheffield Children’s and the Northern General Hospital will be there.
Outside of these clinics you will be seen in routine cystic fibrosis outpatients at Sheffield Children’s.
There are a few reasons why we have a separate clinic for young people:
To help you to become more independent with your cystic fibrosis care. For example:
It will also give you a chance to talk about other issues including:
It will give you opportunities to meet with the adult cystic fibrosis team from the Northern General Hospital.
Yes. The idea is that over time you will become more confident with your treatment and feel able to ask and answer questions about your physiotherapy, diet and how you are feeling in general.
At first you might like to have your parents or carers with you. After a while, maybe after 2 or 3 clinics you may feel confident to see the doctor, physiotherapist, dietitian and nurse by yourself.
Your parents or carers might like to go and have a cup of tea or coffee in the café downstairs or sit in the waiting area for you.
When you have finished speaking to the doctor your parents or carers will be invited back into the consulting room to discuss any changes to your cystic fibrosis treatment.
They are at the adult cystic fibrosis centre at the Northern General Hospital and some of them join us in the young person’s clinic.
Their team includes:
When you come to the adult cystic fibrosis centre, the cystic fibrosis team from Sheffield Children’s is always there. During these joint clinics, Sheffield Children’s will be responsible for you care at all times.
By meeting the adult cystic fibrosis team on a regular basis over time you will get to know them so that when you move over to adult services after your 16th birthday, you will know them and they will know you.
Cystic fibrosis unit
Telephone: 0114 271 7319 or 0114 271 7375
Cystic Fibrosis Nurses Sandra Bott and Karin Newton
Please note: this is a generic information sheet relating to care at Sheffield Children’s NHS FT. These details may not reflect treatment at other hospitals. This information is not intended as a substitute for professional medical care. Always follow your healthcare professionals’ instructions. If this resource relates to medicines, please read it alongside the medicine manufacturer’s patient information leaflet. If this information has been translated into another language from English, efforts have been made to maintain accuracy, but there may still be some translation errors. If you are unsure about any of the guidance in this resource or have specific questions about how it relates to your child, always ask your healthcare professional for further advice.
Resource number: CF6
Resource Type: Article
Western Bank
Sheffield
S10 2TH
United Kingdom
Switchboard: 0114 271 7000
We’ve got a special MRI scanner just for teddies so children can see what it’s like before they have a scan.
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