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Cystic fibrosis inpatient stay

Timetable during inpatient stay

Download a PDF of the timetable during inpatient stay

What do I need to bring with me?

You will need to bring with you:

  • medicines, inhalers, physiotherapy equipment, nebulisers
  • clothes, nightwear, toiletries (toothbrush, hairbrush and so on)
  • nappies or sanitary wear if needed
  • favourite toy, book, comic, or school work (electrical items will require safety testing, please ask your nurse to arrange this)
  • some wards may ask you to bring a towel in
  • avoid bringing in valuables (the Trust can not accept liability for any loss or damage)

Arriving at the ward

You will be given a cubicle.

Please stay in your cubicle and please do not use the play room. You can ask for toys to play with in your room during your stay to stop you from getting an infection and avoid mixing with other children with cystic fibrosis.

A nurse will ask for a brief history and carry out some observations of your pulse, breathing, blood pressure and temperature. You will be weighed on admission (or asked to attend the growth and measurement service). A doctor will also meet you and examine you. The nurse will put a name band on your wrist which needs to stay on during your stay. Please tell the nurse if your name band comes off.

Visiting

You are allowed to have parents and carers visit. If you wish to bring children under 5 years old, please discuss this with the ward manager.

Most of the wards allow 1 main carer plus 2 other visitors at the bedside. Parents or carers need to supervise children and siblings who are visiting.

Visiting should end at about 9pm. 1 parent or guardian may stay at the bedside overnight on the wards. There are also some rooms available for parents to stay in, off the wards.

Please note restrictions are in place due to COVID and these will be explained on admission.

Transport

There is a Q-Park opposite the main hospital entrance.

The 51, 52, 273, 274 and 275 buses pass the front of the hospital. The 40 and 120 pass by the front of the Hallamshire hospital which is just a short walk to Sheffield Children’s.

The blue and yellow routes to the Sheffield University tram stop is just a 5 minute walk to Sheffield Children’s

The wards are sign posted from the main entrance.

Ward rounds

The cystic fibrosis team have ward rounds on Mondays at 2pm and Thursdays at 2pm. We will weigh and measure you and do spirometry (your ‘blows’) before these ward rounds. On Monday to Friday you will be seen by a doctor from the respiratory team. At the weekend you will be seen by the doctor on call (a team of doctors who look after all patients).

School and play

If you are staying in for more than a couple of days and are school age, you will be seen by a teacher and you will be given some schoolwork to do. There are also play specialists on the wards who can provide games and toys.

IV antibiotics

If you need to have IV antibiotics you will have some bloods taken during your stay. This is a tobramycin (antibiotic) level. The 1st blood test will be taken 18 hours after having the 1st dose and then at the beginning of the 2nd week. These blood tests are taken using a butterfly needle into a vein.

What happens if I need to go to theatre?

You may need to be admitted to go to theatre for a few reasons.

If you need to go to theatre or we think you may need to, we will ask you not to eat or drink. This is often for a few hours before you would go down to theatre. If you are on a planned list you will get a rough time of the operation. This may not be possible if you are on the emergency list.

A consent form will need to be completed by a parent or legal guardian with the doctor, before any operation. Your parent or carer can come with you to theatre until you are asleep.

When you wake up you will be in the recovery area and when ready you will return to the ward. You can have bits of food and drink slowly until the effects of the anaesthetic wears off.

Physiotherapy

The physiotherapy team will see you daily during your stay including at weekends. They will discuss with you a treatment plan for your stay. Exercise sessions are available as part of your treatment. Please bring in trainers and sports wear for these sessions.

Your medicines and inhalers

Please remember to bring in your medicines and inhalers; this helps us when prescribing your medicines. The pharmacy team will check your medicines and can give you more to take home at the end of your stay.

Refreshments

On the ward breakfast is provided and a hot food trolley will be sent to the wards for 12pm and 5pm for children only. Patients can get a breakfast slip and meal slip for the canteen and snacks from the dieticians.

Parents do not get food provided for free.

Canteen opening times will be explained on admission. Hot meals are available for breakfast, lunch and in the evening. There is a café and a kiosk in the main entrance and vending machines are located around the hospital. There are parent rooms with facilities to make a drink and heat food. The Co-op Food is across the road from the main entrance.

Other things to expect

You may need to have your blood pressure taken regularly (we will decide how often depending on the reason for taking it).

You may have your urine checked.

If you are 12 years or older you will have blood sugars taken during your stay. This will be before you have breakfast and about 1.5 to 2 hours after meals. This is a finger prick performed by the nurse on the ward.

Other information

Parents or carers are able to ask the ward for meal vouchers if your child is in for 4 days or more. Please ask the ward staff or the cystic fibrosis nurses for more information.

If you are receiving benefits please ask us about the emergency family fund to help with increased costs that may occur.

Please let us know if you are struggling with costs or childcare.

Contact us

Switchboard: 0114 271 7000
Ward M1: 0114 271 7525 or 0114 271 7524
Ward M2: 0114 271 7298 or 0114 271 7332
Ward S1: 0114 271 7345 or 0114 271 7398
Ward S3: 0114 271 7392 or 0114 271 17394

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Disclaimer

Please note: this is a generic information sheet relating to care at Sheffield Children’s NHS FT. These details may not reflect treatment at other hospitals. This information is not intended as a substitute for professional medical care. Always follow your healthcare professionals’ instructions. If this resource relates to medicines, please read it alongside the medicine manufacturer’s patient information leaflet. If this information has been translated into another language from English, efforts have been made to maintain accuracy, but there may still be some translation errors. If you are unsure about any of the guidance in this resource or have specific questions about how it relates to your child, always ask your healthcare professional for further advice.

Resource number: CF20

Resource Type: Article

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Hannah Lees

NHS

Western Bank
Sheffield
S10 2TH

United Kingdom

Switchboard: 0114 271 7000

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