Help to transform our extraordinary hospital into something even better.
Bilevel positive airway pressure (BiPAP) ventilation is a type of breathing support that assists your child’s ability to breathe. It uses a mask and a BiPAP ventilator. The ventilator blows pressurised air through a mask into the airway and lungs. This will open up the airway to let normal breathing to happen.
The machine helps your child’s quality of life – it is not a life support machine and will not do your child’s breathing for them. It will help your child’s breathing pattern to help your child breathe deep and fill their lungs. The BiPAP machine will deepen the breath and make sure the lungs are given enough air to let normal breathing happen.
Normal breathing is important as it lets your body take in enough oxygen, and let carbon dioxide to leave your body. The pressure increases when breathing in and the pressure decreases when breathing out. This makes breathing easier.
Your child may have had a home oximetry or a sleep study during an overnight visit to the hospital.
These measure a few body functions such as:
These results will have shown your child has a breathing disorder called central sleep apnoea (CSA) or hypoventilation.
In CSA the body ‘forgets’ to breathe for periods when asleep. Hypoventilation happens when your child does not breathe enough to fully oxygenate their body.
You may also have noticed that your child is suffering from daytime symptoms such as:
These are all signs of sleep disordered breathing.
CSA and hypoventilation are only a problem when your child sleeps. For this reason your child will only need to use the machine when they are sleeping. Bilevel gives pressure throughout the night to stop the airways closing. It also lets the respiratory muscles rest and decrease the work of breathing. When used every night your child’s sleep quality and daytime symptoms should improve.
Explain to your child that they are using the machine at night to help them to sleep easier and this will also make them feel better during the daytime.
Your child will need to get into a routine of using their equipment all night, every night. They will need lots of support and encouragement from those around them. Support from parents and carers is the most important part to make this successful. It is recommended that you let your child wear the mask for short periods of time regularly during the first few days.
This can either be in the daytime or early evening, but should always be when there is a parent or carer there to offer support, encouragement and distraction when needed.
A team at Sheffield Children’s hospital specialising in all aspects of sleep disordered breathing and home ventilation.
This team is made up of:
At the moment, it is better to try starting BiPAP ventilation at home rather than in a hospital. It is often less stressful for you and your child and makes it easier for your child to get used to the ventilation. However this is does depend on the severity of your child’s condition and is up to your consultant to decide.
It is important for your child to start ventilation as soon as possible. If this cannot happen at home then we will need to arrange a hospital admission to help.
To begin with, the hospital will give you a loan machine to borrow. This will be arranged with your local Primary Care Trust (now Clinical Commissioning Groups (CCG)). Once treatment has started, your local CCG will be responsible for replacing broken equipment and consumables. Once the team have agreed to start treatment on your child we will provide you with the following:
The machine just needs wiping clean with a damp cloth. All the settings and buttons on machine are locked, so you cannot accidentally change any settings whilst cleaning machine.
If your machine has a humidifier chamber, this can be washed out with hot water and left to dry. Do not put humidifier chambers through dishwashers as this can cause them damage.
The mask and tubing needs to be disconnected and aired out daily. Wash them out regularly (once a week) by hand washing them in warm soapy water. Thoroughly rinse all the parts and leave to air-dry before using them again.
The cloth headgear is cannot be washed and spares will be given if they become soiled.
There are two air filters on your machine. The round, bacterial air filter (at the front of the machine) should be changed at least once a month. The internal dust filter will be changed by your community nurse. Do not wash or recycle used air filters.
Most children will not suffer from one night without the BiPAP therapy.
However if there is a problem with the machine we need to be told as soon as possible so we can fix the fault and give you with a replacement machine.
If a problem happens within office hours please contact Lee Richardson or Amika Challacombe immediately on either the mobile or office telephone found at the bottom of this page.
If the problem happens out of hours and you are concerned about your child’s welfare, you may need to contact Sheffield Children’s hospital to get advice from the medical registrar on-call (contacted via switchboard 0114 271 7000).
If your child’s mask is too tight on their face it can sometimes cause pressure areas on their face. This can cause discomfort and can make the face sore.
Make sure that the mask fit is good and not too tight. If your child’s face does become sore, please contact the team for advice.
If your child breathes out of time with the ventilator it will send the wrong pressure while breathing in or breathing out, which can cause discomfort.
The most common reason for this is a mask leak which can be fixed by using a different type of mask or by changing the settings on the machine. This can be done either at home or in hospital by the team.
In most cases bilevel therapy is a long-term treatment. If your child follows the treatment, it will help their quality of sleep. This will then help:
When you come for a follow-up appointment, please bring all of your child’s equipment with you. Including ventilator, mask and tubing so that we can check them.
Your child will have regular home visits from the specialist nurse to check on your progress and carry out home monitoring.
You will also have regular clinic appointments with your consultant in the hospital. Once a year your child will have an overnight stay in hospital to make sure all the settings on the machine are correct for your child’s needs.
It is very important that your child makes it to all of their clinic appointments so the medical team can keep a regular check on your child’s progress
Switchboard 0114 271 7000
Home Ventilation Team Office:
Answer machine: 0114 271 7435
Amika Challacombe: 07469 375 856
Lee Richardson: 07747 636 341
Please note: this is a generic information sheet relating to care at Sheffield Children’s NHS FT. These details may not reflect treatment at other hospitals. This information is not intended as a substitute for professional medical care. Always follow your healthcare professionals’ instructions. If this resource relates to medicines, please read it alongside the medicine manufacturer’s patient information leaflet. If this information has been translated into another language from English, efforts have been made to maintain accuracy, but there may still be some translation errors. If you are unsure about any of the guidance in this resource or have specific questions about how it relates to your child, always ask your healthcare professional for further advice.
Switchboard: 0114 271 7000
We’ve got a special MRI scanner just for teddies so children can see what it’s like before they have a scan.
Help to transform our extraordinary hospital into something even better.